Got Questions About Spina Bifida? β’ SB Awareness Month
October is Spina Bifida Awareness month.
Unfortunately last October I was in survival mode so I kind a missed it, or better put I was not psychologically able to make anyone aware of anything and all I could manage was to wake up every morning with the goal “don’t kill the baby” #truth. But, now that my son is 15 months old and I’m a little more “seasoned” in this thing, I thought I’d dedicate this month to raising awareness of this extremely common birth defect by posting several pieces throughout the month.
I am participating in the Verizon Wireless Style Voices program and was provided with the Β Samsung Galaxy Camera, Nokia Lumia 928 and six months of service in exchange for my honest opinions. This video below was shot with the Samsung Galaxy Camera.
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First up is a call for questions in video form below complete with a cameo of your favorite baby, Mr. Flickerbug himself!
or Click here to watch it directly on my YouTube Channel.
Click here to watch My Testimony Video from earlier this year.
Do you have any questions about Spina Bifida? Leave them in the comments below.
I will compile questions and make an answer video later in the month.
Oh and have you subscribed to both my YouTube channels? If not, subscribe so you don’t miss any videos that I post there. Here you go:
Click here to subscribe to YouTube.com/Glamazini
Click here to subscribe to YouTube.com/IamGlamazini.
Thank you! *mwah*
Roshini Cope
Roshini Cope, aka Glamazini, is a life coach and video creator who gained a following for her natural hair tutorials, which evolved into authentic personal stories of healing with a consistent dash of humor. She is a black woman healing helping other black women heal, expand their self-awareness, reclaim their joy, and create the life they want. Work with Roshini π€β¨π€
17 Comments
Damita Frye
I’ve read about Spina Bifida, diagnosis, treatment, causes and symptoms. They say most cases are mild cases and need no treatment. Other, more severe cases require surgery. Is your son a mild case with little to no treatment necessary? With a grandson with Down Syndrome, I know having a child with a birth defect is challenging at best. How are you handling the daily care with your son? I know as moms (and grandmas), we will do anything for our children. Is his daily care challenging for you? Do you have a daily routine for you and your son to help with this birth defect? Is there any extensive research being done specifically for Spina Bifida (not through March of Dimes)? Praying for the best for you all!
glamazini
Hi Damita! Thanks for all the questions. I’ll make a video responding soon.
Chewie
Are there varying degrees of SB? Does this impede flicker’s ability to walk/crawl so that he will need a wheel chair? Are there other issues besides just nerve and lower body function that he’ll have to deal with? How much does surgery enter into the picture over his lifetime? I know you mentioned he has already had several surgeries…:( Poor lil’ dude. He sure looks like a happy and healthy baby. What a precious face. He is a blessing.
glamazini
Thanks for the questions Chewie. I’ll make a video responding soon.
Chewie
Also…that afro…KILLIN IT!
HAD to mention the hair. π
glamazini
LOL, thanks π
Jones
I have never heard about the Spina Bifida in my whole life . I dont know why ? But now that you have explained it here , now i become aware of this . Thanks for this information that you shared with us . π
Jones recently posted..Cool Hair Color Ideas To Give Yourself A Complete Makeover
BigTickles
I was made aware of Spina Bifida only from Nicole Ari Parker and Boris Kodjoe when talking about their daughter; before then, radio silence. Even when I did my pregnancy testing, it seemed they only mentioned down syndrome and other possibilities. Do you think it is (or will be) getting more awareness like autism? I have the same questions about SB being a spectrum disorder. Do people with SB also have to do OT, PT, and speech? Can the condition stay the same as people get older – is their a possibility of improvement or regression? Can SB lead to another health diagnoses? For instance with ASD, some are also ADHD, ADD, or other emotional issues.
P.S. Girl, I was praying that flickerbug did not pull your earring so much so that I had to watch the video twice to hear what you were saying…smh! I couldn’t even wear dangling earrings for almost 2 years because they were a daily target …. so hats off to ya! haha
glamazini
Now he will pull an earring, but a diva must be a diva LOL! Thanks for the questions, I’ll address them in an upcoming response video soon.
Janet
Hi, I think your video is awesome and the “content” as well. I have like anyone else, heard about it but, never really got acquainted with the particulars of it until it hit “home.” Thank you for sharing your story and am deeply encouraged by the inner strength that you exude. Looking forward to progressive learning about spina bifida as you feel enlightened to share and encourage others.
I am aware that your baby uses a “stander.” Is he able to stand on his own without the apparatus? Until next time, Blessings!
glamazini
Hi Aunt Janet! No he is not able to stand without it.
TyaD
First of all I want to tell you that you are an inspiration. I appreciate how you are dealing with both depression and a baby with SB and not to mention life in general. You share it with us. You appear to be genuine and hard working and really doing the very best you can. Your son is a blessing and a treasure!
I have heard of SB but I must admit that I don’t know much about it. I was just wondering if you took folic acid supplements and if the DR recommended that for you. I’ve read that it MAY help in prevention of SB.
Thanks.
glamazini
Thanks! I’ll respond in an upcoming video soon π
Lele
He’s a beautiful child! He looks a lot like you.
Thanks for raising awareness and bringing spina bifida to our attention. As a woman of child bearing age (and who is contemplating have another baby), I really appreciate it. I only have one question since everyone seems to have asked so many questions already: Is SB painful?
glamazini
Thanks for the question Lele. I’ll respond in an upcoming video.
Whispers Closet
just wanted to say that you so inspirational, and i love you so so much..such a inspirational person
glamazini
Thank you π